Work Packages and Partners

Coordination of the project (WP 1)

Fondazione IRCCS, Istituto Nazionale dei Tumori, Italy

Gemma Gatta  – WP Leader

Dissemination of the project (WP 2)

The University of Edinburgh                                                           

Ian Kunkler  – WP Leader

Evaluation of the project (WP 3)

Institut de Cancérologie Gustave Roussy

Ellen Benhamou  – WP Leader

Information on epidemiology of rare cancers (WP 4)

Istituto Superiore di Sanita’

Roberta De Angelis  – WP Leader

Istituto Superiore di Sanita’

Riccardo Capocaccia

Information on centres of expertise for rare cancers (WP 5)

Integraal Kankercentrum Nederland

Sabine Siesling  – WP Leader 

Information on clinical management of rare cancers (WP 6)

Fondazione IRCCS, Istituto Nazionale dei Tumori, Italy

Lisa Licitra  – WP Leader

Information for patients with rare cancers (WP 7)

European Cancer Patient Coalition

 Francesco De Lorenzo – WP Leader