RARECARENet – Information Network on Rare Cancers

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Information Materials for Rare Cancers

HEAD NAD NECK IN GENERAL
Macmillan Cancer Support:  Macmillan Cancer Support Information 

NASAL CAVITY AND SINUSES
Macmillan Cancer Support:  Macmillan Cancer Support Information 

NASOPHARYNX
Macmillan Cancer Support:  Macmillan Cancer Support Information 
START Oncology:  START, laymen information  

MAJOR SALIVARY GLANDS AND SALIVARY-GLAND TYPE TUMOURS
Patient Organisation:  Mouth Cancer UK – English 
Patient Organisation:  ACCOI – English 
Macmillan Cancer Support:  Macmillan Cancer Support Information 
START Oncology:  START, laymen information  

HYPOPHARYNX AND LARYNX
Patient Organisation:  AgaliaZO – Greek  
Macmillan Cancer Support:  Macmillan Cancer Support Information 

OROPHARYNX
Macmillan Cancer Support:  Macmillan Cancer Support Information 
START Oncology:  START, laymen information  

ORAL CAVITY AND LIP
Patient Organisation:  Mouth Cancer UK – English 
Macmillan Cancer Support:  Macmillan Cancer Support Information 

OESOPHAGUS
Patient Organisation:  Mouth Cancer UK – English 
ESMO:  ESMO Patient guide 
Macmillan Cancer Support:  Macmillan Cancer Support Information 

SMALL INTESTINE (Small Bowel)

 

COLON (Pseudomyxoma peritonei)

 

ANAL CANAL

 

PANCREAS

 

LIVER AND INTRAEPATIC BILE TRACT (IBT)

 

GALLBLADDER AND EXTRAHEPATIC BILIARY TRACT (EBT)

TRACHEA

 

LUNG (Rare sub-types)

 

THYMUS

MESOTHELIOM
Patient Organisation:  Amarape – French  
Patient Organisation:  Mesothelioma Guide – English 
Support Community:  Mesothelioma Group – English 
Information Website:  Mesothelioma Explained – English 
Macmillan Cancer Support:  Macmillan Cancer Support Information 

CORPUS UTERI

CERVIX UTERI

OVARY AND FALLOPIAN TUBE

VULVA AND VAGINA

PARATESTICULAR AND TESTICULAR CANCERS


PENIS


PROSTATE (Rare sub-types)

PELVIS, URETER AND URETHRA


BLADDER

NON SKIN MELANOMA

CENTRAL NERVOUS SYSTEM (CNS)

ENDOCRINE ORGANS (Thyroid etc)

SARCOMAS

GIST

NEUROBLASTOMA AND GAGLIONEUROBLASTOMA


NEPHROBLASTOMA


RETINOBLASTOMA

NEUROENDOCRINE TUMOURS

RARE LYMPHOID DISEASES


Lymphomas


T cutaneous lymphoma (Mycosis fungoides, Sezary syndrome)


Hairy cell leukaemia


CLL (Chronic Lymphatic Leukemia)


Plasmacytoma/Multiple Myeloma (and Heavy chain diseases)


Waldenstrom macroglobulinemia

ACUTE MYELOID LEUKEMIA AND RELATED PRECURSOR NEOPLASMS


Acute myeloid leukemia


MYELOPROLIFERATIVE NEOPLASMS


Chronic myeloid leukemia (CML)


Other myeloproliferative neoplasms (PV, ET, myelofibrosis)


Mast cell tumour (Mastocytosis)


MYELODYSPLASTIC SYNDROME AND MYELODYSPLASTIC/MYELOPROLIFERATIVE DISEASES


HISTIOCYTIC AND DENDRITIC CELL NEOPLASMS