Cancer List
Rationale
The attached document provides a definition of rare cancers and explains the criteria used for defining the cancer entities shown in the list.
Rationale and Questions for Consensus – download PDF
List of Rare Cancers
This is the list of tumour entities from which rare tumours are identified as those with incidence less than 6 per 100,000 persons / year. The list presents the number of cases reported by European cancer registries during the period 2000-2007 and the corresponding incidence rates. The list is derived from the data of 94 population-based cancer registries from 24 European countries adhering to the RARECAREnet project.
This list includes information on all cancers defined by the RARECARE and RARECAREnet project.
Please note that rare cancers are only those with an incidence of <6/100.000
Download RARECAREnet List Excel spreadsheet Updated October 2015
Experts for the Definition of Rare Cancers / Rare Cancers List – download PDF
Rare Cancers List Endorsers
Childhood Cancer Research Group, http://www.ccrg.ox.ac.uk
CML Advocates Network, http://www.cmladvocates.net
EUROPA DONNA – The European Breast Cancer Coalition: www.europadonna.org
European Association for Cancer Research (EACR), http://www.eacr.org
European Association of Neuro-Oncology (EANO), http://www.eano.eu
European Association of Nuclear Medicine (EANM), http://www.eanm.org
European Cancer Patient Coalition (ECPC), http://www.ecpc.org
European Group for Blood and Marrow Transplantation: www.ebmt.org
European Oncology Nursing Society, http://www.cancernurse.eu
European Prostate Cancer Coalition, Europa Uomo, http://www.europa-uomo.org
European Society of Gynaecological Oncology (ESGO), http://www.esgo.org
European Society for Medical Oncology (ESMO), http://www.esmo.org
European Society for Paediatric Oncology (SIOP), http://www.siope.eu
European Society of Surgical Oncology (ESSO), http://www.essoweb.org
European Society for Therapeutic Radiology and Oncology (ESTRO), http://www.estro.org
International Brain Tumour Alliance (IBTA), http://www.theibta.org
International Union Against Cancer (UICC), http://www.uicc.org
MYELOMA EURONET A.i.s.b.l(ME) Leukaemiehilfe RHEIN-MAIN e.V. (LHRM), http://www.myeloma-euronet.org